Well, I’ve gone and done it. I am several years late to the table, but I feel compelled to join the blogging world due to all the misinformation that exists about MS, it’s current therapies and the controversial CCSVI therapy.
I am not a doctor. I am a patient. Some doctors love my patient style- well read, asks questions, willing to try anything. Some hate it- those that want me to take my drug and shut up about it already.
Suffice it to say that I am used to being my own advocate.
I was diagnosed with MS in 2004. At last count, I have 34 lesions in this lovely gray matter I call a brain. I still walk, talk and survive just fine. I haven’t had feeling in m left hand since 2008 and I used to have killer fatigue, brain fog and a variety of other issues over the years.
I have been on beta-inteferon, solu-medrol, Provigil, antibiotics, even chemo to try and slow the progression of my disease. No dice.
I had the “liberation treatment” done in August 2010. It was the first treatment to make me feel human again. Over time, if I don’t get bored with this blogging thing, I will tell yo about it. 🙂
For now, since I’ve told you a bit about me, tell me a bit about you!